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Controversial autism guru offers Scots a £7,000 'cure'

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Published Date: 07 September 2008
AN AMERICAN medical guru who charges thousands of pounds to "cure" autistic children is heading to Scotland amid a storm of controversy.
Raun Kaufman insists he "fully recovered" from the condition and can show others how to do the same.

But medical experts and autism groups have accused Kaufman's organisation of misleading parents, claiming there is no scientific evidence.

A n
umber of specialists – including one of Scotland's most senior consultants – have urged families to think long and hard before signing up for the Son-Rise programme, which can cost more than £7,000.

More than 50,000 people in Scotland are thought to have some form of autism, typically leaving them with difficulty in communicating and interacting with others.

Autism is a neurological disorder and most scientists believe there can, therefore, be no "cure". The symptoms of the condition are usually addressed through education in specialised classes with small numbers of pupils. With years of expert support, youngsters can make significant progress and go on to gain qualifications and hold down jobs.

Kaufman, who runs the Autism Treatment Centre of America, based in Massachusetts, will give a lecture at Heriot-Watt University, Edinburgh, on October 5 entitled 'An Autism Solution' and is also due to speak in London, Manchester and Birmingham.

UK tour coordinator Rachel Jacobson predicted that a capacity audience of 200 people would attend the free Edinburgh talk.

People attending the lecture who are interested in learning more will be offered a consultation session with a Son-Rise counsellor. They will then be given official books on the programme including A Miracle To Believe In and Happiness Is A Choice. If they are still interested they can then sign-up to begin one of the intensive Son-Rise programmes.

Jacobson said Kaufman's speech would "debunk the myth" that autism is incurable.

"We have seen full recovery in many, many people since then, but it is challenging to give an exact number."

The Son-Rise scheme encourages parents to mimic their child's behaviour in order to increase trust.

Parents are also advised to create a distraction-free "playroom" in their home with toys and food being kept out of reach in order to compel youngsters to communicate.

Dr Iain McClure compiled NHS Scotland's guidelines on Autism Spectrum Disorder (ASD) last year and examined a variety of outside treatment programmes.

He said: "There was no evidence found for a cure by any method.

"As far as mainstream clinicians and researchers who work with autism are aware, autism is not a condition that one recovers from."

McClure, a consultant psychiatrist with NHS Tayside, urged parents to consult the Scottish Intercollegiate Guideline Network website before investing in any treatment.

"For every parent that Son–Rise presents as being convinced their child has been 'cured' or improved, there will be an equal, if not greater, group who will be dissatisfied."

Dr Richard Mills, director of independent charity Research Autism, also urged caution.

He said: "Anecdotal reports of recovery are not evidence. There have been no independently conducted, peer-reviewed scientific trials of the Son-Rise method so we cannot recommend it to parents."

And Carol Povey, head of adult services with the National Autistic Society, said: "I have spoken to Raun Kaufman and told him there is no cure for autism. To claim otherwise is to mislead families who are extremely vulnerable."

Dr Katie Cebula, of Edinburgh University, has conducted research into the impact of Son–Rise on families.

The committee member of the Scottish Autism Research Group said: "Around half of those involved reported that it caused some difficulties for their family life.

"Nearly all reported some financial impact."

Cebula said there were also anecdotal reports from parents who found the programme helpful, but said further independent evaluation was needed to get a complete picture.





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  • Last Updated: 06 September 2008 7:12 PM
  • Source: Scotland On Sunday
  • Location: Scotland
 
1

Charles Linskaill,

Edinburgh 07/09/2008 01:25:53

Give the man a 'break', afterall he has to earn a living! :)

And lets,..'face-it' you would be mad to believe all his,..

.....'Baloney'

But 'God' loves a tryer, does he/she not,?
2

Birnamo,

Edinburgh 07/09/2008 06:08:29
American 'faith healers' are something else. Not far removed from celebrities who sell there wares because there are mugs willing to buy.
3

mrroy,

07/09/2008 07:32:30
Google and find
"Effectiveness

Although Son-Rise had never participated in published formal scientific evaluations of effectiveness,[11] clinical trials and a retrospective long-term study of program participants began in 2008.[4] Questions have been raised whether Raun Kaufman was actually autistic before being treated.[12] There are no documented normalizations with older children, and it may be that success "depends on a certain level of intellectual potential".[13] Some professionals have questioned the emphasis placed on eye contact and its potential aversiveness for some children.[11]

The consensus within the medical community is that there is no cure for autism and only a very few treatments have empirical evidence for improvements in symptoms.[12][14] A 2003 study found that involvement with the Son-Rise Program led to more drawbacks than benefits for the involved families over time, although family stress levels did not rise in all cases.[2] A 2006 study found that the Son-Rise Program is not always implemented as it is typically described in the literature, which suggests it will be difficult to evaluate its efficacy.[3]"

Wikipedia
4

agatha,

07/09/2008 09:37:48
I dpn't know why I'm dignifying either post with a reply but ColBlimp, thankfully for us parents of a child on the Autistic Spectrum you show a dreadful ignorance of the condition. And Charles if I have understood some of your other rantings, I think you are expecting a child? I hope for your (and more importantly your wife's)sake it has no imperfections. If it does you will come to understand how desperate people can feel and would not be as sympathetic to someone "trying to earn a living" at the expense of others.
5

somerferg,

perth 07/09/2008 10:59:08

Well said Agatha - yes those particular commentors are renouned for their stupid comments and clearly show NO undersatanding about this complex and difficult issue.
6

Charles Linskaill,

Edinburgh 07/09/2008 12:27:11

#5/#6,

Well if you both want to believe in a "autism guru" I hope your £7,000 is well spent, but I will keep my £7,000 and seek tried and tested methods.

I think most people with a modicum of intelligence will see your posts are a childish attempt to do me discredit.

As for the subject on "autistic children" I would say,...

"Don't tell your Granny how to Suck Eggs" (a saying)

I can beat you both 'hands down' on any children's health issues, one would be wise to think before one speaks, if one does not know the qualifications and circumstances of who they are attempting to mock!
7

zeno,

www.thinkhumanism.com 07/09/2008 12:44:40
Thanks to mrroy for some good sceptical information. It says it all.
8

print the legend,

07/09/2008 14:22:22
Charles,
No-one needs to mock you, the facile and churlish tone of your comments does that job just fine.
You have managed to upset people who have to deal with the effects of autism with your cheap shots and then you attempt to cop out of the hurt you have caused by some vague suggestion of personal involvement/knowledge of autism.
Even if that is true it does not give you the right to have a laugh ( or whatever you are doing ) at an issue that is heartbreaking for those unlucky enough to have to live with it.
9

Charles Linskaill,

Edinburgh 07/09/2008 14:46:20

And the thick get thicker, maybe one should learn to read without acting like some stoneage mob on a witch hunt.

In noway was I mocking autism, one was making comment on the "guru"
10

Matt there,

somewhere 07/09/2008 19:12:23
"Hello. I am a doctor. There is no treatment for autism. Well, yes, but we still expect you to put your child through our programmes of non-treatment, which pays us all a nice, fat salary."

Sorry. but who are the charlatans, exactly?
11

Gabriel,

edinburgh 08/09/2008 13:33:29
My sister in law cured her son from autism using this Son-Rise scheme.
12

WillsDad,

Essex 07/11/2008 23:26:03
For several reasons I was skepical of Son-Rise. But when it comes to autism GPs can offer nothing, scientists very little. However, we tried Son-Rise, and immediatley my 1yr old responded. 10 months later he is transformed. Of those few parents I've encountered who have tried Son-Rise, none regretted it. Just because Son-Rise has not been scientifically proven is not a reason not to try it. I don't know why it works, but for my son it has. Besides, when it comes to knowledge, science knows very little.
Where does £7000 come from? I read about son-rise and tried it - got the best reaction from my son for months - for free. My wife then attended the start up on London. Thanks to Cauldwell, cost us (and most people) about £300. Very American, overtones of cultiness - bit uncomfortable. Then, cleared out a bedroom, bought a large mirror £130, shelving £12/£15. For £445 my son has gone from not recognising that his parents or anyone else exists to wanting to be picked up for a cuddle (and much more besides) within months. If your child is autistic, I would urge you to give it a go along with other scientifically unproven interventions such as diet, probiotics etc. Ignore the rants and uninformed, selective journalism. Autism interventions have been pioneered by parents and it is to them you should listen.
13

Florica Stone,

Suffolk, uk 24/11/2008 17:35:14
Having entered the ‘world of autism’ in 1992, and looking for help, cure, support - name it what you will – I found it in the Son Rise; or so I thought. If we are led to believe that a child beginning to talk, and that a solitary child turning into a smiling and interacting human equates with a cure for autism, then certainly Son Rise fits the bill. But as you come to understand autism and realise that autism goes beyond language and social interaction you can begin to understand why we cannot cure autism.
My once non-verbal son, now 19, is just as autistic as he ever was. However he can talk and interact with us. I do not parade him as a cured child because I acknowledge how hard it is for him to think in language. I am grateful that he worked hard at improving his communication skills and that via those we have built a mutually understanding relationship. Claiming that I, or those who have played with him, ‘cured’ his autism would be a gross injustice.
Should you wish to see Alexander’s transformations go to http://www.youtube.com/autismflorica
I do not regret our trip to the USA because at that time The Option Institute was the only place prepared to try and reach out to my child in a way I did not know how. I do however regret buying into the ‘cure syndrome’. Semantics matter. When, after 3 years of home schooling Alexander gathered ‘enough’ language and social skills he went on to mainstream school. BIG mistake. He was required to behave ‘normal’. How could he? He was autistic. He was talking in English, yet half his vocabulary lacked shared meaning. He was a literal talker and that wasn’t half the story. He became depressed. At age 12 my son was depressed. He believed that his school was the only school in the world and that if we moved he would not have to go school. His reality was not our reality.
So a new process began for us. Out of school, and over two years of ‘weeding’ his language and understanding we made progress once more.
I have asked t
14

Florica Stone,

suffolk uk 24/11/2008 17:36:30
(continued) I have asked the Option Institute for a refund for not curing my child. Guess what?
In a nutshell: Can they teach you something worth learning? Yes. Can they cure your child? No.
Should we change the way we educate our autistic nation? Yes.
Who has the money?

15

Tom Marazzo,

Toronto 27/01/2009 03:57:45
Numbers 1,2,3,4,7,8,9,10 You simply don't know what you are talking about! Number 11 - well said! Number 12 - Awesome! Number 13, thanks for your honesty. Number 14&15. I'm sorry you had a good overall experience which led to an unhappy ending for you.

Charles - I feel very sad for you! Let me ask you this, show me the irrefutable evidence that "love" exists! Or is it just anecdotal evidence? My wife and I have both traveled to the US to do training in Son-Rise and never once did anyone ever promise to recover our son. It is not a cure, it is recovery! It is about respect, and dignity for the child you are tying to help and further, it is a way of life, not a program that you turn on and off. Charles, you cannot be a professional medical person working with children because you don't have compassion or respect for the parents you are trying to discourage. You are small, and trying to make yourself appear as an authority on something you fear and don't understand. This program has done more for my son and my marriage, than ABA could have ever done. I fail to see why you would try to take hope and encouragement from all of these families - especially when you have never taken the training which I strongly encourage you to do. If you knew anything about the other therapies, you would easily be able to make a comparison to house breaking a dog. These are human beings who deserve respect, and at least with Son-Rise, they get it. Let me point out that autism is a "spectrum" disorder and that no two people are the same so to say that unequivocally that Son-Rise doesn't recover people is ridiculous, when I know several children who have been fully recovered. I also know several children who haven't been fully recovered from Son-Rise but at least there is significant improvement and the child is always valued, loved and respected for who they are. Do you think giving a child a treat because he/she touches a blue triangle 10 times is respectful and loving,
16

Tom Marazzo,

Toronto 27/01/2009 12:54:15
So Charles, tell everyone here what sort of vast autism experience you have that we should all take exception to. Why should all of us foolish Son-Rise parents reject any sort of hope because of your vast amount of wisdom and insight on the Son-Rise program. Have you ever even taken the training, or are you just in the business of trying to shatter the opportunities of parents like me, who live with autism. To all of the naysayers who put posts here, have any of you taken the training at Son-Rise (other than Number 14/15)? My son, who was first diagnosed as "sever" is almost neuro-typical from Son-Rise and the GFCF diet. We didn't receive "professional medical" help which gave us hope - and no one guided us through this except for other parents who love their autistic children. Not Doctors and certainly not people who act so irresponsible as to write posts that are meant to discredit the only place in the world to give your child a chance and hope to parents. Believe me Charles, and the rest of you, if you ever have an autistic child, Son-Rise is the program that you want to start with! And seeing how The ATCA is non-profit, they will even help you with the tuition!
The last thing I will say about Son-Rise is that if the family doesn't follow through with the program to its fullest potential, or seek clarification, then it isn't the Son-Rise program that is flawed, it is the family that is implementing the program! It is just unfortunate that the program takes the criticism for the lack of determination of the family!
17

Brian 2,

USA 29/01/2009 13:37:56
Hello all,

I am a parent of a formerly autistic child. I attended the Start Up program, because the approach made sense and I liked the hopeful outlook. At the Start Up I learned techniques that have been developed over time to help me connect more with my son in a play based way. I also learned how to be more hopeful and less overwhelmed. My son is now very social, has friends, in mainstream school, and has no diagnosis. I guess I am one of those success stories, my son is recovered and I attribute that to what I learned and the fact that I put what I learned into practice using the Son Rise approach.

I understand the skepticism, we are in a cynical world, one in which it can pay to be cynical. All I can say is the more I learned from the people at Son Rise the more I trusted them, they earned my trust to be honest.

My son is recovered from autism and for that I will always be grateful to the staff and founder of the Son Rise program.

They are doing multiple studies at this point, you can see them on the web sight. The BBC has done several long term investigative reports on the program so has discovery health and may other reputable news outlets, all very positive. The Caudwell Children Charity must also be very comfortable with Son Rise they help hundreds of families each year attend the training programs, and they have an excellent reputation in the UK.

The web sight has hours and hours of video that clearly explain the program and what to do with techniques. I recommend anyone who has a child with challenges watch one of the videos based on what you need help with and then decide from that point.

I know they also offer free phone calls so you can get any questions answered.

I was skeptical, I called, I liked what I heard, I attended and now my son is without challenges. Maybe if you call you will like what you hear, maybe not but at least then you will decide based on first had information and that is always good.

Warm regar
18

Florica Stone,

uk 24/02/2009 23:38:27
would love to meet/ pay for the trip of your formerly autistic child to my home or county(including you and your wife) talk to Alex first
you cured autism
we must celebrate you.
your son must meet my son
you need no sorrow for me.... just give that cure to the world

lay of or produce
19

Florica Stone,

25/02/2009 22:03:41
http://www.youtube.com/autismflorica
20

Florica Stone,

17/07/2009 00:55:05
Gary McKinnon
who wants to help him?
son rise please sign up

 

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